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All resources

Our resources and documents include training and career guidance, research and audit reports, policy statements, service standards and online learning. You can use the search or filter to find what you're looking for.

Resource

Engaging children and young people in epilepsy services - about this project

Welcome to our resources for increasing the impact and influence of children, young people and their families’ voices - and to create a listening culture - in your paediatric epilepsy service. We want the views of children, young people and their families about their own care, and for service improv...

Epilepsy

Engaging children and young people

Resource

Engaging children and young people in epilepsy services - audience and influence

Here are examples of how your service can build the feedback and suggestions from children, young people and families into your service planning and delivery - and keep them updated.

Epilepsy

Engaging children and young people

Resource

Engaging children and young people in epilepsy services - communication cards

Children, young people and families have created these easy-to-use and fun cards to help you facilitate children and young people’s voice in their care and your epilepsy service. They discussion starters on feelings, health topics and conversation prompts as well as a worksheet on communication pref...

Epilepsy

Engaging children and young people

Resource

Engaging children and young people in epilepsy services - how to get started

Getting new projects or initiatives off the ground can be daunting, especially in between running clinical services. This section has ideas, tips and experiences from epilepsy services to help get you started on your engagement journey.

Epilepsy

Engaging children and young people

Resource

Engaging children and young people in epilepsy services - space and voice

These resources offer varied ways to get feedback from children and young people about your service. Use the activities in existing clinic time or host specific events.

Epilepsy

Engaging children and young people

Resource

Engaging children and young people in epilepsy services - the Lundy model

Listening, understanding and actively engaging with the views, experiences and voice of children, young people and their families within your service brings many benefits. This section introduces the Lundy model, which sets out four criteria that are vital to participation: voice, space, audience an...

Epilepsy

Engaging children and young people

Document

Engaging with children and young people - finding people to work with

Within your healthcare setting there will be children, young people and their families that are keen to work with you on safety improvement, service design and quality improvement. Speak to your local engagement lead, hospital forum or hospital education staff and find out who is available where you...

Engaging children and young people

Children and young people's voice

Patient involvement

Resource

Enteral calcium and phosphate supplementation in neonates and children - position statement

This statement is produced by Neonatal and Paediatric Pharmacy Group (NPPG), with support from RCPCH. There are no licensed oral liquid calcium or phosphate products available in the UK. Administration of an effervescent calcium or phosphate tablet is common, and this statement provides guidance for...

Resource

Environment (Air Quality and Soundscapes) (Wales) Bill - consultation response

In April 2023 we responded to the Welsh Government consultation on the Environment (Air Quality and Soundscapes) (Wales) Bill. We welcomed this consultation.

Resource

Epilepsy Passport

This downloadable paper record gives essential up-to-date information about a child or young person’s epilepsy. This includes their emergency care plan, medication history and key professional contacts.

Neurology

Epilepsy